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Anxiety and Depression Took A Turn - Now It's ANGER!!!!!!


for 19 år siden 0 295 logo logo logo logo logo logo logo logo logo logo 0
Hi Lorie theres not much more i can add to what has already been suggested but i just wanted you to know im thinking of you.Please take care. Lulu..
for 19 år siden 0 24 logo logo logo logo logo logo logo logo logo logo 0
Thank you so much for listening. I talked to my partner tonight and it looks like she may have to stay for another week, if not longer. But what I have to face when she comes home, I hate to say, but maybe it's good that she stays there for a while. Thanks again, Lorie
for 19 år siden 0 110 logo logo logo logo logo logo logo logo logo logo 0
I'm so sorry Lorie. I really will send positive thoughts your way. Vickers had a nice suggestion: getting help from a nurse that would come every so often to help out. Maybe that could help you out a bit, at least. Best of luck, and vent anytime you want, we'll support you.
for 19 år siden 0 24 logo logo logo logo logo logo logo logo logo logo 0
There are 2, if not 3, more tests that they want to do. The next test is, they want to run a cathader (sp?) up through her thigh into her brain, where they will put a dye in and check the damage. And at the same time, they want to inject something into her brain to put half of it to sleep at a time. They want to see what side of her brain is affected by her seizures. And the 3rd test is an all day psyological (sp?) study. She has to spend the day doing things mentally and physically to see how her brain is damaged. And if that doesn't show them enough, then she has to go back in the hospital for who-knows-how-long to have electrodes surgically implanted directly onto her brain. And they hope for her to have seizures while they are implanted. They want to determine which side is shorting out. Now of course all of these tests are necessary before they consider surgery. No one wants them to start carving on to her head without them being absolutely positive of what they are doing. But the only problem is, is it's going to take MONTHS. The hospital is so booked up that she won't even get all of her tests done until next year sometime. And that's not even the actual surgery. So I am facing months of hell! I just feel that I should have been told. When I kissed her goodbye and told her it was going to be ok, I meant it. Well I lied. Because it's not ok. Not only is she being forced to "short out" and reduce her quality of life to a rock, but also to mess with mine and our 5 year old. It's just not right!
for 19 år siden 0 24 logo logo logo logo logo logo logo logo logo logo 0
Thank you both! I'm at my wits end right now. Even as I write this tears are streaming down my face. I am so worried, anxious, and plain "pissed off" that I can't see straight. If I only knew this was going to happen I could deal with it easier - I think. I feel used, and betrayed. I think the doctor's should warn "these" people's caretakers that this is going to happen. Not spring it on them. Now I look forward to her coming home being a turnip. With her having seizures again, not only will she not remember from one minute to the next, but she won't be able to drive again. And having a "real" conversation is going to impossible. Why bother, when she won't remember anything I say. I know it's not her fault, but I'm overwhelmed with frustration. I guess what I'm looking for is validation. Someone who can understand how MAD I am! Here I have had 6 months with her being seizure free, driving again, and actually have conversations that she remembers, to now having nothing but a couch potato that mumbles. I know no one can help me, except me. I have considered looking into a visiting nurse. Someone who can watch her and stop her from bashing in her head when I have to go out. Someone who is capable of watching her. No family member wants this responsiblity, and I really can't blame them. Taking care of her is really intense. I love her more than life itself, and I KNOW she loves me, but I'm tired. I am so exhausted I can barely function. And part of me feels if I was already "defunked" I could deal with this better. I suffer from PTSD so my anxiety is a constant. I rarely have breaks. And now with all of this I can barely function, but somehow I do. I have to. My daughter needs me. I am going to see a doctor again this wednesday. I haven't had one in over 5 years. I hate doctors A LOT! But I think I need one, just in case. But I'm afraid that after this doctor sees me, she's going to say that I'm one of the biggest "nutcases" she's ever seen! Oh well! Thanks again for your support! I'm sure I will be reaching out again when I can't take it anymore. Thanks for being there! Lorie
for 19 år siden 0 110 logo logo logo logo logo logo logo logo logo logo 0
Hi Lorie, that does seem strange for them to send her home without meds... but I'm sure there's a reason for that? DId they tell you why they didn't want her to go back on her medication?
for 19 år siden 0 222 logo logo logo logo logo logo logo logo logo logo 0
Hey Lorie! I'm so sorry you're having to deal with so much! Obviously, I can't say I know how you feel, but I can imagine your frustration, worry, guilt, anxiousness, on and on and on...... And I am very sorry you are having to go through so much right now!! There must be a reason the doctors are doing it this way though. I'm not sure why, but there must be a reason. Try to have patience and do what needs to be done. Hopefully, there's reason in this madness and it will help them find a way to help her. I know you are extraordinarily frustrated and overwhelmed, probably to the point of breaking, but she does need you right now. Please hang in there and stay as strong as you can. Everything comes to an end and at some point, a solution will be found and this nightmare will end, or at least become easier. In the meantime, it's going to take an awful lot of patience and faith. Or maybe just staying strong and doing what needs to be done until it's over. :confuse: I hope that makes sense. I'm sure you're feeling guilty for wanting this to be over and for not wanting her to come home so you don't have to deal with this every day, especially in front of your daughter. It's perfectly normal to not want to deal with this anymore. I'm sure you love her and want to do everything you can for her and I'm sure you just don't want to deal with it anymore. Hang in there and do what you can. Believe it or not, you are stronger than you feel. Have you thought about hospice care? It may help you out quite a bit to have a nurse coming over daily to help. Maybe it will lighten the load. Look into it and see if that's an option.
for 19 år siden 0 444 logo logo logo logo logo logo logo logo logo logo 0
Dear Lorie, I am so sorry to hear of what you are going through, I do not blame you for being angry, actually I prefer anger to anxiety/depression, my husband always says "As long as your pissed off Deb you are alright". But I believe this is not right, can you tell the Doctors that you can NOT handle this and you have a small child to care for, I am not a Doctor of course but this sounds very irresponsible and unethical to send someone home to have seizures on her own, I can imagine that you are very worried, can you tell them you have no medical training, if she is going to have seizures she needs to be monitered, this sounds very wrong, can you talk with someone about this, the hospital administrator or something, you have every reason to be concerned. If it comes to this through Lorie, from your posts you sound very strong and determined and somehow someway you will get through this, I will pray for you and hope that this can be worked out. You are very strong and brave, I admire your courage. Please let me know how you are. God bless, Debbie.
for 19 år siden 0 24 logo logo logo logo logo logo logo logo logo logo 0
Hi again, Everything has been going ok. Living a day at a time without my partner being here, and actually surviving. I thought I had it in the bag until today. My partner called me up and dropped another bombshell. Originally she was supposed to go up to the hospital where they were going to take away all her meds and wait for her to have a seizure, or 3. Before she even went up to the hospital we were told that as soon as she had her seizures, and they were happy with the tests, they were going to put her back on her meds and send her home. Now they are saying that they are going to send her home without any medications. They want her to continue having seizures at home. I'm furious. I was not prepared for this. I just went through a whole year of her having them every 6 weeks. She traumatized our 5 year old. Even though I tried so hard to be a buffer between my daughter and my partner, it didn't always work. And when my daughter sees her other parent convulsing on the floor and turning blue she freaked. As anyone would. It's not a pretty sight. Now she hasn't had a seizure at home since March and I finally got to a point where I could relax alittle. The pills were working. And my daughter was finally not watching my partner like a hawk, wondering when she was going to collapse again. And now I am looking forward to her coming home to ruin all the holidays. My daughter got a part in the city's ballet "The Nutcracker", and now my partner will ruin that too. The rest of the year is going to be absolutely unbearable. I get to look forward to being even more of a nurse maid than I already am, and trying to protect my baby. A few days ago I couldn't dream of being without her and now I'm dreading her coming home! I see no happy ending, not for a long time! And I wonder why I'm anxious! Thanks for listening - AGAIN! Lorie

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