Hi,
I wanted to let all those who have talked to me through this horrible time an update on my partners doctor's visit.
She went to Denver today to talk about her brain surgery. After a 2 hour consultation, the doctor wants to run 3 more tests even before she will consider surgery.
One, she has to go and stay at the hospital for 3-5 days, where they will take her off all her medications and wait for her to have a seizure. They hope that she will have at least 3 while she's there.
Second, they want to run a catheter from her crotch to her brain and run dye in her brain to see the damage. AND they want to, at the same time, run a drug into her brain that puts half of it to sleep, and do the same to the other side. Guess to check out the damage from a different point.
Third, they want her to have an all day neurological study. Where they make her do things and watch her, mentally and physically.
When all the tests are run, then they are going to gather a team of brain surgeons and doctor's and decide the next step. They need to do the test to make sure that removing the part of the brain that they need to doesn't interfere with her ability to talk. Or they could do it and she will lose ALL of her memory.
Well, now that it's over I can take a breather. But now comes the next stage. And all these tests can take up to a year to get done. Being that the hospital that she's going to, which is a fantasitic hospital, is so booked that sometimes it takes months to get in. Heck, she's had this appointment for today since May.
But I wanted to let all who responded what was going on. And to thank you again for being there. It really helped!
Thanks,
Lorie
